After much grief from several family members and friends I am giving in and writing another blog. I apologize for the long delay...there has been so much going on. It seems like just when things settle down with her I have to work extra hard at work to catch up on things that I have missed. Anyways...we're back and I'll try to stay on top of it more.
We are still home. The hospital bed has been amazing is allowing us to be comfortable. She's close to everyone and everything and doesn't have too far to move.
Our mobility has become very limited. The thigh muscles are the first to go so we are unable to get her up and down any steps. This has limited us only to the downstairs half of the house. Unfortunately we only have a half bathroom downstairs. So...our friend Dell helped us put up an outdoor shower in the backyard. This has been a huge blessing for us. The instant water heater tank helps us to keep her warm and lets us use any outdoor water source. It's a pretty cool setup.
On October 18th (the 2 year anniversary of my dad's death- from a blood clot in his left leg) the doctors discovered 2 blood clots in my moms left leg. The pharmacy that we were going to had made a huge error and given my mother a medication that was not meant for her- written by a random doctor for another random patient. The side effects of this medication were of course swelling in her feet and ankles. Though they can't guarantee that those pills caused her blood cots, they also can't say that they didn't. This was another stress that was just not needed.
Lovonox shots and cummadin were given to her to help thin her blood. These shots, for those of you who are not familiar, are very strong and very painful. They are darted into the skin and leave huge marks on her skin. We had just finished our first round when we had to go back to the ER. The swealing just would not go down. Another round of shots it was. Things seem to be getting better but we are still waiting.
We are coming up on our 2 week anniversary of being off treatment. We're waiting for our hospice evaluation (hopefully soon). She's been able to decrease her medications from about 22 pills to around 12. We are also no longer diabetic. With the steroids and the chemo pills out of her system her blood sugar has become regulated again. Not having the 5 shots a day has made her feel less like a push pin.
We laugh at some of the child like symptoms that she has developed (or regressed to). She sings a song "Where does the wind come from? Does anybody know?". She has an obsession with buttons. She deletes EVERYTHING. From the contacts in her phone, to the text messages. The address book in her car or the shows recorded on the DVR. If you are texting and we ask you "who is this?" please don't be offended. She has just deleted your information from her phone.
I will not lie. She is fading pretty quickly. Some days are better than others. We love every minute where we see her shine through. I wish I could say differently. But...we are thankful for the moments, pray for more and keep asking God to grant us strength and guidance.
I promise that the next blog will come sooner than later. Thanks for the love <3
No comments:
Post a Comment